You’re here to support someone with HAE. We’re here to support you.

We know that taking care of a loved one with hereditary angioedema (HAE) comes with questions and concerns. Learn what to expect once they start their treatment—and how to help them stay on track.

4000+

ADULTS AND ADOLESCENTS HAVE BEEN PRESCRIBED TAKHZYRO SINCE 2018*

What to expect when your loved one starts TAKHZYRO

Your loved one and their doctor likely chose to help prevent HAE attacks with TAKHZYRO for several reasons. One of those may have had to do with the results of the clinical studies. In those studies, people taking TAKHZYRO had fewer HAE attacks on average, and some even had periods of time with zero attacks.

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If you’re caring for a child with HAE, you can find information about HAE in children

You can also explore our pediatric brochure for tips and support on helping your child stay on track with treatment.

DOWNLOAD PEDIATRIC BROCHURE

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Help your loved one start off right

Make sure your loved one remembers why they started taking TAKHZYRO.

Encourage them to keep taking TAKHZYRO as prescribed and continue to reimagine their life with HAE. Sticking to their HAE preventive treatment plan is the best way to help stay ahead of future attacks.

It’s possible your child may experience breakthrough attacks while taking TAKHZYRO. Some children may experience them more frequently in the first few months of treatment.

Your child’s on-demand medication should always be readily available in case of a breakthrough attack.

  • Takeda Patient Support Specialists are available to meet with your child's school nurse to educate them on how to support your child with HAE. Together, they can create an HAE attack plan for your child. Contact your support specialist for more information.
Also, it’s important to make sure you or your loved one has an emergency plan in place in case of a life-threatening attack. Create an HAE Attack Plan

TAKHZYRO is the #1 prescribed preventive treatment* in HAE and is approved for patients 2 years of age and older.

*Based on total patients on HAE preventive treatments according to US third-party industry healthcare data.
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I'm lucky to have people who support me, and I'm not afraid to ask for their help. In a way, they're part of my HAE team. They give me the support I need to stay on track.”

Dylan

Real TAKHZYRO patient

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Frequently Asked Questions

While we recommend you ask your healthcare team any treatment questions you have, here are some frequently asked questions and answers you may find helpful.

Is training available for caregivers who want to learn how to give TAKHZYRO to their loved ones?
Absolutely! Once somebody has been prescribed TAKHZYRO, they become eligible for a free product support program called Takeda Patient Support. This service gives those living with HAE and their caregivers the opportunity to receive at-home injection training via a trained nursing professional. Be sure to arrange for this as soon as possible to make sure you and your loved one are comfortable with the injection process and know what to do.
As a caregiver, how can I make sure I am also taking care of myself while helping my loved one through their TAKHZYRO treatment?
Caregiving is hard work, so it’s important to take care of yourself every chance you get. Remembering to accept help from others and seeking assistance when needed are two things that can help you have time for stress management. Eating nutritious foods and sleeping for enough time at regular intervals also go a long way in maintaining your physical health. Creating a calendar for treatment days can also assist in relieving the stress of missing a necessary injection.
What resources can help caregivers keep their loved ones on track with their treatment?
There are several resources caregivers might find helpful. The TAKHZYRO Text Reminder Program can help make sure you never miss a date by sending messages when it’s time for the next dose. On top of that, the TAKHZYRO Journey Journal can help you easily keep track of dosing days, attacks, and your loved one’s management plan. Takeda Patient Support can also provide support by offering educational materials, financial assistance options, and regular check-ins with a support specialist.
What kind of information should caregivers prepare for future doctor appointments or hospital visits?

Caregivers have many things they need to pay attention to in the day-to-day lives of their loved ones living with HAE. These can include:

  • Any new health issues
  • How often they use on-demand medications
  • New or existing HAE triggers. These may include stress, exhaustion, hormonal fluctuation, or physical activity
  • the location, intensity, and duration of all attacks
  • What their attacks were like before preventive treatment and what they’re like now

Your loved one can use the Journey Journal to track these details. As a caregiver, you can help them update this journal and share it with their doctor. This can help everyone see how much progress they’ve made with their treatment goals.

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